The results of our healthcare survey have been published by the Journal of General Internal Medicine in a paper "Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership". We found that autistic adults report significantly worse health care experiences than their non-autistic peers. View the press release, download the paper (PDF, ~220Kb), or read the paper online.
The workshop is open to the public. The agenda, meeting materials, and instructions for video cast and conference call access are available at www.iacc.hhs.gov/events/2012/strategic-planning-workshop-announcement-oct29-30.shtml.
We presented at this year's Autreat. Our presentation was called "Getting The Most Out of Healthcare".
Article by Christina Nicolaidis published in online American Medical Association Journal of Ethics.
Nicolaidis, C. What Can Physicians Learn From the Neurodiversity Movement? Virtual Mentor: American Medical Association Journal of Ethics. June 2012<http://virtualmentor.ama-assn.org/2012/06/toc-1206.html>, Volume 14, Number 6: 503-510.
AASPIRE members Dr. Katherine McDonald and Dora Raymaker presented an AAIDD webinar on Ethical Issues in Developmental Disability Research. View webinar, slides, & references.
Sebastian Dern presented "Healthcare outcomes and barriers to healthcare experienced by autistic adults in the United States" at the 5th Scientific Meeting for Autism Spectrum Conditions (WTAS) in Augsburg, Germany.
Autism NOW hosted a webinar about AASPIRE. The webinar, given by Christina Nicolaidis, is available to watch on-demand. Slides are also available.
Data collection for Study 1 of the Healthcare Toolkit has ended and collection for Study 2 has begun.
For news from earlier times see archives: 2011 - 2009 ~ 2008 - 2006