Publications

dora and elesia standing in front of a poster about the healthcare study

Papers

Nicolaidis, C., Raymaker, D., McDonald, K, Dern, S., Ashkenazy, E., Boisclair, W.C., Robertson, S, Baggs, A. “Collaboration strategies in non-traditional CBPR partnerships: Lessons from an academic-community partnership with autistic self-advocates.” Progress in Community Health Partnerships: Research, Education, and Action. 2011:5(2);143-150.

Presentations

Nicolaidis, C. Effective Partnering with the Autistic Self-Advocacy Community to Advance Intervention and Services Research. Presented at the National Institutes of Health Ethical, Legal, and Social Implications of Autism Research Workshop. Bethesda, MD., September, 2011.
NIH ESLI 2011 PDF slides (~1.5 mb)

McDonald, K., Kidney, C., Stack, E., & Patka, M. (June, 2011). Valuing inclusion: collaborative research with persons with disability. Symposia presented at 2011 meeting of the Society for Community Research Action, Chicago, Illinois.

Nicolaidis, C., Raymaker, D., McDonald, K., Ashkenazy, E., Dern, S., Boisclair, W.S., Baggs, E., Delaney, R., Way, R. “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autistic spectrum. Oral abstract presentation. Annual Meeting of the Society for General Internal Medicine. Phoenix, Arizona, May, 2011.

Raymaker, D.M., (2011, March) Nothing about us without us: partnering with autistic adults to improve healtcare. Presented at Developmental Disabilities: Update for Health Professionals, San Fransisco, CA.

Nicolaidis, C., Raymaker, D.M., (2011, March) Partnering with autistic adults to improve healtcare. Presented at the Psychiatry Grand Rounds, Oregon Health & Science University, Portland, OR.

McDonald, K.*, Raymaker, D.M., Perry, A., Patka, M., Kidney, C., Stack, E., Nicoladis, C. (2011). Including adults with intellectual and developmental disabilities in research: methods and ethics. Presented at National Multicultural Conference & Summit, Seattle, WA. *all authors contributed equally to the presentation

Raymaker, D.M., Ashkenazy, E., & Nicolaidis, C. (2010, October) Community-based participatory research. Workshop presented at the Family Medicine Education Consortium NE Region Meeting & Residency Fair, Hershey, PA.

Raymaker, D.M., & Nicolaidis, C. (2010, September). The dynamics of autistic-academic partnerships. Presented at the Critical Autism Studies Workshop, Ottawa, Canada.
CASW 2010 HTML Abstract
CASW 2010 PDF slides (~2 mb)

Kidney, C., Raymaker, D., McDonald, K., Boisclair, C., and Nicolaidis, C. (2010, June). Participation in online communities: exploring the impact of accessible communication. Presented at the Society for Disability Studies, Philadelphia, PA.

Nicolaidis, C., Raymaker, D.M. (2010, May). Strategies for effective collaborations with geographically-dispersed communities and people with disabilities. Presented at the Community Campus Partnerships for Health Annual Conference. Portland, OR.

Raymaker, D.M. (2009, May). Augmentative and Alternative Communication. Presented at the Interagency Autism Coordinating Committee Full Committee Meeting, Washington, DC.
IACC 2009 PDF slides and comments (~1.8 MB)

McDonald, K., Raymaker, D.M., Robertson, S., & Nicolaidis, C. (2008, May). Participatory action research with disabled adults: advancing scientifically sound, socially relevant, ethical research. Symposium presented at the American Association for Intellectual and Developmental Disabilites Annual Meeting, Washington, DC.
AAIDD 2008 HTML abstract
AAIDD 2008 PDF slides (~480 KB)

Poster Sessions

Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Ashkenazy, E., Boisclair, W.S., Baggs, A., Delaney, R., Way, R. Healthcare disparities experienced by adults on the autistic spectrum. Scientific Poster Presentation. Annual Meeting of the Society for General Internal Medicine. Phoenix, Arizona, May, 2011.

Nicolaidis, C., Raymaker, D.M., McDonald, K., Ashkenazy, E., Boisclair, C., Dern, S., Baggs, A., Delaney, R., Way, R. (2011, February). CBPR to improve the healthcare of autistic adults. Poster session presented at the 4th Scientific Meeting for Autism Spectrum Conditions (WTAS), Berlin, Germany.

Nicolaidis, C., Raymaker, D.M., McDonald, K., Ashkenazy, E., Boisclair, C., Dern, S., Baggs, A., Delaney, R., Way, R. (2010, October). CBPR to improve the healthcare of autistic adults. Poster session presented at the Family Medicine Education Consortium NE Region Meeting & Residency Fair, Hershey, PA.